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Mikki630's Breast Cancer Chronicle
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Home
About Me
About Breast Biopsies
Drains
Understanding your Pathology Report
Ports for Chemotherapy
Pictures--Hairloss and Regrowth Timeline
Lymphedema
Our Experience
Attitude is EVERYTHING
Your Kids, Your Cancer
Women's Health & Cancer Rights Act of 1998
Reconstruction Photos--WARNING!!! GRAPHIC
Paget's Disease of the Nipple
The Breast Self Exam (BSE)
Calcifications
Breast Cysts
Fibroadenomas
Nipple Discharge
Understanding Fibrocystic Breasts
My Journal
LINKS

Demystifying breast cancer, one step at a time...

You will find links for all sorts of websites here. Hope you find something that helps you!  If you encounter a broken link, please email me. Cut and paste the link into the body of your email. Thanks for helping to keep this site maneuverable! 

 

Breast Cancer Links (other misc.):

 

NEW!!!! 7/04    http://www.ibcrf.org/selfexam.html   Great multimedia (flash) demonstrations of breast self-exams and mammograms!

 

http://www.cancerlinks.org/index.html Very comprehensive site!

 

Journal of Clinical Oncology designed for healthcare professionals, this site may be difficult to understand for a lay person (studies)

WebMD general medical website

SusanLoveMD.com considered to be the "Mother" of breast cancer, her site has easy to understand info & a paid consultation service

ibreast.com another physician site. Excellent and easy to follow--lots of GREAT info here (ports etc.)

CancerLinks (all types) good site with lots of info about all types of cancer

CancerBACUP cancer information and support-including treatment, chemotherapy etc in the UK

Cancer Risk Assessment and Counseling  (genetics) excellent site on BRCA1 & BRCA2, genetic testing etc. Explains things well

Understanding Your Breast Cancer Pathology Report you can order this and other FREE publications from Y-ME.

Fact Sheet Advanced Breast Cancer Resources

Patient-Centered Guides Breast Cancer This resource center has been created especially for those with metastatic breast cancer -- individuals who have been initially diagnosed with Stage IV cancer or who are facing a recurrence.

Inflammatory Breast Cancer   

Breast Cancer Risk Screening Tool Risk calculators for breast cancer from Dr. Steve Halls, MD

Miraluma Scans  discusses an effective way to see tumors in young, dense breast tissue

Pregnant with Cancer a site for pregnant women with any type of cancer; info & support

 

Breast reconstruction: some sites have illustrations, some have photos of the results of the different procedures. Please note that not all procedures may be available in your area. Some physicans may be better at one procedure than another--you REALLY need to do your homework in selecting a physician and a procedure!  There may a physical reason why one procedure may be better for you than another--you and your plastic surgeon will have to discuss this. My website is NOT endorsing one procedure over another, nor am I endorsing any physicians who may be listed in these sites.

 

OncoLink: Breast Reconstruction After Mastectomy enter "breast reconstruction" in the search field and follow the links.

What are the Most Common Methods of Breast Reconstruction?  Canadian hospital site

Breast Reconstruction-PS.org

Breast Cancer : Publications

Breast Reconstruction (DIEP flap) this is a physician site--you can also view a flash or non-flash presentation

Dept. of Plastic and Rec. Surgery, Malmö, Sweden: THE DIEP FLAP (part 2)  a Swedish site, translated into English when you click the British flag.  Good photos.

MD Anderson

Breast Restoration examples

See also my Reconstruction photo page

 

Lymphedema (lim-fa-DEE-muh): helpful sites explaining what/how the lymph system works (with diagrams)what it is, why every woman with lymph node removal needs to be aware of it, signs/symptoms of lymphedema, discussion of treatment, and how to LIVE with lymphedema

 

National Lymphedema Network

National Lymphedema Network-Links

List archives at LISTSERV.ACOR.ORG  a lymphedema message board, not just for secondary lymphedema (may get a little "heavy")

eLymphNotes the first e-zine on Lymphedema--good info

LYMPHEDEMA LINKS   University of Pittsburgh site--lots of links here

Discount Surgical Supplies--arm sleeves and gauntlets

Bandages Plus bandaging suppllies for wrapping arms/legs

Therapist Directory listing of therapists trained in the Klose Norton method of manual lymph drainage

Human Anatomy Online - InnerBody.com

The Lymphatic System Introduction

Circle of Hope Lymphedema Foundation, Inc. provides resources, information       Lymphedema Awareness Bracelet & charm an attractive way to let the medical field know you have or are at risk for lymphedema

See also my lymphedema page

 

Dealing with children/ Your feelings: helpful sites on how to tell your kids, what to expect with their behavior as you go through treatment etc, and dealing with YOUR feelings.

 

Children's Reaction to Cancer  an excellent article addressing children of all ages (toddlers to young adult)

NEW!!!!!         Study in communication between parents and children about maternal breast cancer

KidsCope site with links has excellent information for helping kids who have a parent with cancer

KidsKonnected great site with free teddy bears available to kids who have a parent with cancer. Lots of helpful info here!!

Cancer's Psychological Changes- article in Scientific America

WebMD - Body Image Article  great article on body image for women facing cancer

 

See also my Kids and cancer page

 

 

NEW!!!!!      Websites specifically for Black Women:

 

http://www.sistersnetworkinc.org  Info, advocacy & support for survivors of breast cancer. Call 1-866-781-1808 anytime.

http://www.celebratinglife.org

http://www.breastcancerblackwoman.org

 

 

 

Support Groups  & Uplifting Sites:   

                                                                                                                                          

Whether you're looking for a place to refresh your soul, to "lurk" (which means to read posts on message boards but to not post yourself), or just hang around with friends on the message boards--these are the links to check. See also the Personal Cancer Websites listed below!

 

Healing Well  a wonderfully supportive breast cancer online community

 

iVillage breastcancer message board   This fast archiving board is one of the many places you can find online support in the form of a message board.  To find the most current board, click on "current board" after getting to the site. To read posts on the older boards, click on "archives of the board". There is also live chat available several times a week--check the top of the board to find out times. M-W-TH 9pm (Eastern), Tues 11am (eastern). No set topics--we decide when we get there (& usually just yak LOL)

Hyster Sisters Hysterectomy Recovery message board. Very attractive site with loads of info/support for those facing/with a hysterectomy.

BREAST CANCER WALL OF COURAGE  add the name of anyone in your life who has had breast cancer. This wall is very powerful.

 

NEW!!!!!          Association of Cancer Online Resources (ACOR)  Has many LISTSERV groups you may join, including cancer & fertility, bc supporters, club mets, cancer & sexuality etc. Pick any groups you like and sign up.  All free.

NEW!!!!!          Inflammatory Breast Cancer help page

 

Personal cancer websites: these are links to sites made by "regular" people and are usually filled with personal stories and/or pictures. To have your own personal site (or another of your favorites) added to these links, please email the link to me.

 

Breast cancer links  a personal homepage

Sue Friedman's Home Page created by sjfdvm, an iVillage BC board member.Site deals with BRCA issues.

My Cancer Odyssey a personal homepage

iVillage Breast Cancer Bulletin Board Roll Call created by joglaze (iVillage BC board) to help keep track of the bios of all our friends

Abreast in a Boat Survivors in Canada participating in rowing competions

The Faces of Breast Cancer puts a face to this disease. Has other links too.

LaMuffin's Breast Cancer Page personal homepage

Mothers supporting daughters with breast cancer (MSDBC) a site for mothers whose daughters have BC

FORCE--Facing Our Risk   Sue Friedman started a nonprofit organization for women at risk of hereditary breast and ovarian cancer.

 

 

Pictures of ivillage bc board members

 

http://photos.yahoo.com/bc/noblebeastie?d&.flabel=fld3&.src=ph

http://www.ivillagefamily.homestead.com/

 

MIsc. sites added in 2001:

 

Breast Cancer - Suite101.com 

http://www.hometown.aol.com/Hmbadler/breast_cancer.htm

Let's not whisper about BC let's ROAR  sample letters to send to our government

 

Generally useful sites: (most are non-cancer related)

 

Women First  a site devoted to the health of women in midlife; comprehensive site with lots of good stuff

On-line Medical Dictionary

On-Line Dictionary, Internet Encyclopedia, & Almanac

Self-Help Law Center

Professional Mechanics Online Free Car Repair Advice

Governmental site listing Internet Hoaxes helps wade through some of those irritating emails you may get

Urban Legends Reference Pages addresses the breast cancer/antiperspirant non-connection here

MapBlast free printable maps and directions

MapQuest free printable maps and directions

USPS ZIP+4 Code Lookup  free zip code lookups

Weatherbank Gives you reasonably up-to-the-hour weather radar anywhere in the US. To use, click on the link. In your browser (the "address" line), change the web address to YOUR state by changing the "/00mi" (which is Michigan) to YOUR 2 letter state abbreviation and click "enter" on your computer (ex. if you're in Florida, that part should read /00fl )

United States Radar Loop

National Warnings Area find current weather warnings in the US from the National Weather Service

The Universal Currency Converter(tm) find the exchange rate to/from any currency in the world

Telephone Directories on the Web worldwide telephone directories, Yellow Pages, White pages listed in English through this link

Unsolicited Mail, Telemarketing and EMail: Where To Go To "Just Say No"

E-Commerce & the Internet

 

Search Engines:

 

Google  Very good at filtering out & narrowing down your searches. Fast, too.

Flip's Search resources  Useful links to worldwide telephone directories, adoptee assistance, genealogy etc.

MiningCo.Com 

37.com - 37 Search Engines

Dogpile, the Friendly Multi-Engine Search Tool  you'll enjoy seeing "fetch" instead of search LOL

Northern Light Search

 

Humor/Fun Stuff:

For those of us facing cancer and its treatments, we recognize the value of a well-placed laugh!  You really need to keep or find a sense of humor to get yourself through this. Play some of these mindless games and forget about things for awhile!

 

Bejeweled another addictive game--lots of fun & appropriate for all ages

3-D Hidden Pictures great site to view hidden pictures and links to create your own--a BLAST!

Marbles          You WILL become addicted to this game of skill. Appropriate for everyone--don't fight over the computer!

The Flying Cow  test your skill at launching a cow onto a target--make it into the Hall of Fame!

PERPETUAL BUBBLEWRAP ahhhhhhhh...the soothing pop of bubblewrap brought to your computer

Virtual internet florist send someone special a virtual bouquet, balloons or animated greeting. Let them know they're appreciated!

wjbgrafx corneal confections exotic patterns are definitely"eye candy"

wjbgrafx cyberToys and ganderCandy java applet collection

Virtual Things to send E-Mail

Painter

FakeMail, pranks & gags:

Funky Winkerbean  the poignant cancer journey of a cartoon character

ClassMates.Com  find classmates throughout the country-leave messages for others on the message board

Alumni.NET - Bringing School Friends Together   "        "

High School Alumni- A Web Site For Alumni of US High Schools   "                 "

Planet Alumni   "              "

 

Marketplace for women: links to online shopping for pampering and finding special items                                                   

NEW!!!!           Donate Mammograms!! Site also has links to the HungerSite, RainForest site and others. A click CAN make a difference!

NEW!!!!           Pink Ribbon Jewelry  more links for other pink ribbon sites soming SOON!!

Sun Precautions: Solumbra sun protective clothing for those of us who are extremely sun sensitive (naturally or due to meds)

Breast Cancer Awareness items in addition to some jewelry, there are tote bags, pink ribbon sun catchers, pink ribbon ornaments etc.

kimowear, cancer treatment clothing, chemo attire, chemo patient attire,

Products including pouches for holding post surgical drains

The Maple collection: discount wig company

Discounts on designer wigs-global delivery

Wig America Company

Large size wigs

Hair Trix by Ace Wigs, the original Wigsite  My own wig was a Hair Trix & I loved it--lots of air holes in the cap & pretty!

Paula Young Wigs

Especially Yours--Wigs for women of color

Mastectomy Bra Salon

Bras and breastforms

Marketplace at WomenFirst.com has lots of different products--exercise wear, aromatherapy, personal lubricants, also nutritionals--please check with your oncologist before using nutritionals! 

Between Us site created by BC survivors whose goal is to provide a "care package" for other survivors for a fee.